Exhibition Feedback

Project Title:

The Visions of Charles Bonnet Syndrome

Researchers:

Prof Andrew Brown, Dr Vincent Moug, Dr Michelle Douglas, Ms Victoria Hamilton, Queensland College of Art, Griffith University
Prof Andrew Brown: Phone – (0)7 3735 6252 Email – andrew.r.brown@griffith.edu.au | Ms Victoria Hamilton: Phone – 0408723276 Email – vicky.hamilton@griffithuni.edu.au

Why is the research being conducted?

This research aims to investigate Charles Bonnet Syndrome (CBS) visions. It is exploring the complex pseudohallucinations that take place when a loss of sight is occurring. It is important to note this is not medical research. The research will focus on how our thoughts become physical visions – through design. Of particular interest to be explored in this study is the link between metaphor and images.
To introduce myself, I am Vicky Hamilton, and had an aneurysm pressing into my optic nerve. I had CBS complex visions for many years. The wish to be able to express these visions to friends, family and doctors has inspired this PhD research with Griffith University. The aim is to provide valuable insight into CBS and to raise awareness by expressing the inexpressible.

What will you be asked to do?

You are invited to contribute in the following way: complete exhibition feedback.
To help us to better understand CBS visions, we would like to ask you about your experience at the visions of Charles Bonnet exhibition. The questions will take around 2 minutes to answer.

Why have you been invited to participate?

You have been asked to participate in this investigation as you are a visitor to the visions of Charles Bonnet Syndrome exhibition. The researchers appreciate that your time is valuable. Your participation or non-participation is entirely voluntary.

What are the benefits of this research?

Charles Bonnet Syndrome is a little-known lived experience. Participation in this study will give you the opportunity to reflect. This survey is for creative/design reasons and is not for therapeutic benefit: there is no medical content. The CBS research community may benefit from the findings of this research.

Risks to you:

As this is a creative/ design survey it is not anticipated there will be any risks to you. Although unlikely, there is a chance that you may feel discomfort. You can decline to give feedback and cease at any time without explanation. If you experience discomfort, you can access free counseling provided through CBS Foundation Australia.

What is Personal Information:

Your personal information can be anything that is associated to you. For example, your name, age, opinions, what you say, and audio recordings.

How are we going to use your Personal Information?

All the data that is collected will by anonymous. The research results will be reported in an academic thesis, and may also be disseminated via journal articles, conference presentations, and an art exhibition.
Who are we going to give this Personal Information to:
After the completion of data collection, the thesis will be available upon request. You will be anonymous in all publication of results.

How will this Personal Information be stored?

Copies of the exhibition feedback will be stored on the Griffith University secure server accessible only by the researchers. No sooner than 5 years from the publication of the PhD thesis, all notes will be shredded, and computer files deleted. All information collected by the researchers will be treated confidentially.

Your participation is voluntary:

If you decide to withdraw your participation at any time, you may do so without providing an explanation.

What if I have questions about this study?

If you have any questions relating to this study, please feel free to contact one of the researchers:
Prof Andrew Brown: Phone – (0)7 3735 6252 Email – andrew.r.brown@griffith.edu.au | Ms Victoria Hamilton: Phone – 0408723276 Email – vicky.hamilton@griffithuni.edu.au
Griffith University conducts research in accordance with the National Statement on Ethical Conduct in Human Research. If you have any concerns or complaints about the ethical conduct of this research project,
you are encouraged to contact the Manager, Research Ethics on 07 3735 4375 or research-ethics@griffith.edu.au.